Search
Author
- Catharina C., Moor (1)
- Katerina, Antoniou (1)
Subject
- PROMs (1)
- Pulmonary fibrosis (1)
Date issued
- 2023 (1)
Has File(s)
- true (1)
Search Results
Pulmonary fibrosis (PF) is caused by a heterogeneous group of diseases, with a high inter-individual variability in disease trajectory. Identifying disease progression in patients with PF has impact on clinical management decisions. However, strategies to early identify and predict disease progression for these patients are currently lacking. In this study, we aim to assess long-term FVC change in patients with PF measured with home spirometry, and evaluate the feasibility of a multinational patient-led registry in PF. In addition, we will assess validity of patient-reported outcomes (PROMs) for the different subgroups of patients with PF. |